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For SLPs6 min read

Advocating for FEES: Getting Patient and Caregiver Buy-In

Patients may feel anxious or unsure about a FEES. The way we explain it, the language we use, and the sense of choice we give can make all the difference in their willingness to participate. This guide is built around three keys: strong rationale, comforting language, and patient autonomy.

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Three keys to successful advocacy

  1. 1

    Present a strong rationale for FEES

    Help patients understand why this test will change their care — not just what it is.

  2. 2

    Use comforting, non-threatening language

    Words shape the experience. Slide, glide, guide, gently, safe — these are the words to reach for.

  3. 3

    Emphasize patient and caregiver autonomy

    Patients have every right to decline. Framing the test as a choice they make builds trust and improves participation.

Understand the patient perspective

Patients may have concerns like:

Will it hurt?

Is it safe?

Why do I need this?

Can I swallow normally during it?

Your goal: replace uncertainty with trust by explaining clearly, calmly, and empathetically.

Use comforting, non-threatening language

Instead of saying
Try saying
“The endoscopist will stick a camera up your nose.”
“A small, flexible camera will gently glide through your nose so we can see how your throat is working when you swallow.”
“The scope goes up your nose.”
“The scope will be guided to the back of your nose so we can watch your swallowing from above.”
“You'll feel it poking in your nose.”
“You might feel a tickle at the start, followed by pressure and possibly a sensation of light irritation.”
“It will only hurt a little.”
“You may experience some discomfort, but overall it is a well-tolerated procedure.”

KEY WORDS TO USE

slide · glide · guide · gently · safe

Some patients may experience genuine pain or significant discomfort during a FEES due to differences in anatomy and individual pain thresholds. Be honest — emphasize that everyone's experience varies, but the procedure is generally well-tolerated.

Set the stage for comfort and trust

Adapt these phrases to each patient and family. They're starting points, not scripts.

  • Explain the purpose: “This test helps us see how your swallowing muscles are working so we can make your eating safer and easier.”
  • Emphasize collaboration: “We'll go through this together. I'll be there with you during the test.”
  • Give control: “You have every right to decline, but I would like you to make an informed decision after learning about this test. If you are open to giving it a try, you can pause or discontinue at any time.”

Have questions about this guide?

Call 562-645-FEES (3337) or email info@camobilefees.com — Jerra and team respond personally.

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